gms | German Medical Science

17. Deutscher Kongress für Versorgungsforschung

Deutsches Netzwerk Versorgungsforschung e. V.

10. - 12.10.2018, Berlin

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Unmet needs of dementia family caregivers: results of a cluster-randomized controlled intervention trial

Meeting Abstract

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  • Ina Zwingmann - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Interventionelle Versorgungsforschung, Greifswald
  • Jessica Monsees - German Center for Neurodegenerative Diseases (DZNE), Interventional Health Care Research, Greifswald
  • Wolfgang Hoffmann - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Bernhard Michalowsky - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Johannes Hertel - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Diana Wucherer - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Tilly Eichler - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Ingo Kilimann - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Stefan Teipel - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Adina Dreier-Wolfgramm - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald
  • Jochen René Thyrian - Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) e.V., Standort Rostock/Greifswald, Health Care Research, Greifswald

17. Deutscher Kongress für Versorgungsforschung (DKVF). Berlin, 10.-12.10.2018. Düsseldorf: German Medical Science GMS Publishing House; 2018. Doc18dkvf124

doi: 10.3205/18dkvf124, urn:nbn:de:0183-18dkvf1243

Veröffentlicht: 12. Oktober 2018

© 2018 Zwingmann et al.
Dieser Artikel ist ein Open-Access-Artikel und steht unter den Lizenzbedingungen der Creative Commons Attribution 4.0 License (Namensnennung). Lizenz-Angaben siehe http://creativecommons.org/licenses/by/4.0/.

Gliederung

Text

Background: Previous research revealed that providing informal care for people with dementia (PwD) is associated with a high degree of caregivers’ unmet needs, burden and health impairments. In order to develop and provide optimal support for dementia family caregivers, the prevalence and type of caregivers’ unmet needs as well associated socio-demographic and clinical characteristics must be investigated and comprehensively assessed.

Objective: The present study comprehensively investigates (a) the number and types of caregivers’ unmet needs and (b) factors of both the caregiving role domains and health-related outcomes associated with caregivers’ unmet needs.

Materials and methods: The present analyses are based on n = 226 dyads of caregivers and their community-dwelling PwD participating in a comprehensive standardized, computer-based caregivers’ needs assessment within a general practitioner (GP)-based, cluster-randomized intervention trial (Identifier: NCT01401582).

Results: A total of n = 505 unmet needs were identified for n = 175 caregivers from the intervention group. Only 24.34 % caregivers had no unmet need (n = 55), whereas 75.66 % caregivers had at least one unmet need (n = 171). Caregivers had on average 2.19 unmet needs (mean = 2.19, SD = 2.15). The number of unmet needs per caregiver ranged from none to twelve. Specifically, 53.10 % caregivers had one up to three unmet needs (n = 120), 18.58 % (n = 42) had three up to six unmet needs, and 3.98 % (n = 9) had more than six unmet needs. Caregivers’ unmet needs were identified across 17 different categories. Specifically, the majority of unmet needs were related to caregiver supporting groups (19.0 %), caregivers’ quality of live and mental health (16.8 %), safety (13.7 %), mobility, balance and falls (13.3 %), depression and anxiety of PwD (7.7 %), as well as impulsive behavior of PwD (5.5 %).

Discussion: Our results underline the importance of a comprehensive needs assessment for dementia family caregivers to develop and implement concepts for optimal support of dementia family caregivers.

Trial Registration: ClinicalTrials.gov Identifier: NCT01401582

Keywords: caregiver unmet needs, caregiver burden, caregiver interventions, caregiver supporting groups, randomized controlled trial