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14th Triennial Congress of the International Federation of Societies for Surgery of the Hand (IFSSH), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT)

17.06. - 21.06.2019, Berlin

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Defining an International Standard Set of Outcome Measures for Patients with Hand & Wrist conditions: Consensus of the International Consortium for Health Outcomes Measurement (ICHOM) Hand & Wrist Working Group

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  • presenting/speaker Robbert Wouters - Erasmus MC Rotterdam, Handtherapie Nederland, Xpert Clinic, Rotterdam, Netherlands
  • N. Davies - International Consortium for Health Outcome Measurement (ICHOM), Project Team, London, United Kingdom
  • A. de la Torre - International Consortium for Health Outcome Measurement (ICHOM), Project Team, London, United Kingdom
  • A. Jobi-Odeneye - International Consortium for Health Outcome Measurement (ICHOM), Project Team, London, United Kingdom
  • A. Shin - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • D. Warwick - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • G. Baek - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • G. Bain - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • G. Leblebicioglu - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • K. Chung - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • L. Dahlin - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • M. Iglesias - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • M. Calcagni - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • R. Sabapathy - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • R. Trickett - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • C. Jerosch-Herold - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • C. Öksüz - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • J. MacDermid - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • C. Novak - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • L. vd. Ven-Stevens - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • R. W. Selles - International Consortium for Health Outcome Measurement (ICHOM), Hand & Wrist Working Group, London, United Kingdom
  • Steven Hovius - Radboud UMC, Erasmus MC Rotterdam, Xpert Clinic, Nijmegen, Netherlands

International Federation of Societies for Surgery of the Hand. International Federation of Societies for Hand Therapy. 14th Triennial Congress of the International Federation of Societies for Surgery of the Hand (IFSSH), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT). Berlin, 17.-21.06.2019. Düsseldorf: German Medical Science GMS Publishing House; 2020. DocIFSHT19-1099

doi: 10.3205/19ifssh1597, urn:nbn:de:0183-19ifssh15973

Published: February 6, 2020

© 2020 Wouters et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.

Outline

Text

Objective: To define a minimum Standard Set of outcome measures and case-mix factors for monitoring, comparing, and improving health care for patients with hand & wrist conditions, with a focus on defining the outcomes that matter most to patients

Materials and Methods: An international working group of patients, plastic & orthopedic hand surgeons, hand therapists and researchers representing 11 countries was assembled to review existing literature and practices for assessing outcomes of treatment for hand & wrist conditions. Currently, a series of 4 teleconferences and 1 break-out session were held and 4 additional teleconferences are scheduled, incorporating a modified Delphi process and standardized methods of the International Consortium for Health Outcome Measurement (ICHOM)

Results: Until now, the working group reached consensus on the classification of 5 tracks: a thumb, wrist, finger, nerve & Dupuytren track, with the distinction between 'regular' and 'extended' tracks. For the thumb track, the following outcome domains were considered 'essential' by the working group after reaching consensus using the Delphi methods: Pain, Grip & Pinch strength, Patient Reported Hand Function/ Activities of daily life, Health-Related Quality of Life, Return to daily activities, Satisfaction, Complications/Revision and Range of Motion (extended track only). Currently, measurement tools are being discussed and Delphi processes are running

Conclusions: A Standard Set of outcome measures for evaluating healthcare for patients with hand & wrist conditions that is appropriate for use across all treatments and care settings globally is being developed. This Standard Set will provide meaningful, comparable and easy to interpret measures ready to implement in clinics and registries globally, facilitating comparisons between treatments and health professionals. We view this set as an initial step that, when combined with cost data, will facilitate value-based health care improvements in the treatment of patients with hand & wrist conditions.