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14th Triennial Congress of the International Federation of Societies for Surgery of the Hand (IFSSH), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT)

17.06. - 21.06.2019, Berlin

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Functional outcome evaluation with the PSFS in patients with Dupuytren’s disease – an alternative to standardized PROMS?

Meeting Abstract

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  • presenting/speaker Yara van Kooij - Handtherapie Nederland, Utrecht, Netherlands
  • Ralph Poelstra - Department of Plastic, Reconstructive and Hand Surgery, Department of Rehabilitation Medicine, Hand and Wrist Centre, Xpert Clinic, Rotterdam, Netherlands
  • Jarry Porsius - Department of Plastic, Reconstructive and Hand Surgery, Department of Rehabilitation Medicine, Rotterdam, Netherlands
  • Harm Slijper - Hand and Wrist Centre, Xpert Clinic, Hilversum, Netherlands
  • Ruud Selles - Department of Plastic, Reconstructive and Hand Surgery, Department of Rehabilitation Medicine, Rotterdam, Netherlands

International Federation of Societies for Surgery of the Hand. International Federation of Societies for Hand Therapy. 14th Triennial Congress of the International Federation of Societies for Surgery of the Hand (IFSSH), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT), 11th Triennial Congress of the International Federation of Societies for Hand Therapy (IFSHT). Berlin, 17.-21.06.2019. Düsseldorf: German Medical Science GMS Publishing House; 2020. DocIFSHT19-1059

doi: 10.3205/19ifssh1564, urn:nbn:de:0183-19ifssh15648

Published: February 6, 2020

© 2020 van Kooij et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.

Outline

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Objective: Standardized patient-reported outcome measures (PROMs) consist of fixed items and therefore may miss issues that are important for the individual patient. The Patient Specific Functional Scale (PSFS) might overcome this problem because the patient identifies important activities that he or she is unable to do in daily live. The aim of this study is to establish the content validity of the PSFS in patients with Dupuytren's disease and determine which of the most frequently-mentioned functional problems are evaluated in the standardized PROMs.

Materials and Methods: Patients treated for Dupuytren's disease were asked to fill in the PSFS and the Michigan Hand Questionnaire (MHQ) prior to surgery and three months after treatment. For the PSFS, patients were asked to identify and score three to five important activities they experienced difficulties with due to Dupuytren's disease. At follow-up, the patients are presented the same activities again and ask to rate the ability for each activity again. Appropriate content validity was defined as at least 90% of the items can be classified in the 'activities or participation' component of the International Classification of Function (ICF).

Results: A total of 308 patients was included. Ninety-six percent of the items could be classified in the 'activity and participation' dimension of the ICF. The most mentioned functional problems were classified in the 'recreation and leisure' domain, including, sports, playing a music instrument and gardening. Furthermore, the PSFS identified a wide variety of functional problems of which the majority (e.g. 'computer use' or 'to put on a glove') was not covered by standardized PROMs like the MHQ.

Conclusions: This study demonstrates an appropriate content validity of the PSFS for patients with Dupuytren's disease. Self-generated items and the evaluation of such items truly reflect the needs and problems of the individual patient and these characteristics make the PSFS a valuable outcome measure for Dupuytren's disease.