gms | German Medical Science

65th Annual Meeting of the German Association for Medical Informatics, Biometry and Epidemiology (GMDS), Meeting of the Central European Network (CEN: German Region, Austro-Swiss Region and Polish Region) of the International Biometric Society (IBS)

06.09. - 09.09.2020, Berlin (online conference)

DataSHIELD: by all means share the information but hands off the data

Meeting Abstract

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  • Paul Burton - Newcastle University, Data Science for Health, Newcastle upon Tyne, Germany

Deutsche Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie. 65th Annual Meeting of the German Association for Medical Informatics, Biometry and Epidemiology (GMDS), Meeting of the Central European Network (CEN: German Region, Austro-Swiss Region and Polish Region) of the International Biometric Society (IBS). Berlin, 06.-09.09.2020. Düsseldorf: German Medical Science GMS Publishing House; 2021. DocAbstr. 28

doi: 10.3205/20gmds092, urn:nbn:de:0183-20gmds0929

Published: February 26, 2021

© 2021 Burton.
This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.


Outline

Text

DataSHIELD (http://www.datashield.ac.uk/, https://github.com/datashield) is an innovative software tool enabling secure remote analysis (or joint, parallelized analysis) of individual-person-data (microdata) from one or several data-sources simultaneously. Security is underpinned by preventing access to, or visualisation of, the individual-level data themselves and by proactively blocking potentially disclosive analytic output. By avoiding the physical sharing of microdata, DataSHIELD can mitigate governance and intellectual property (IP) concerns that otherwise constrain data-sharing. It also circumvents the risk that when a data-set is physically shared with a third-party, its original custodian(s) will lose control over its ultimate fate and it could end up being copied to a jurisdiction with weak governance.

In the seminar, I will explain how DataSHIELD works, outline the practicalities of its implementation which is based entirely on open-source freeware – R and OPAL – and outline the current status of the project. This update will touch on recent developments such as: the release of DataSHIELD v5; its extension to high volume omics data; and some of our newest functions. In addition, I will outline ongoing work applying DataSHIELD in health service and hospital settings – much of which has been led by collaborators in Germany.

The authors declare that they have no competing interests.

The authors declare that an ethics committee vote is not required.