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20. Deutscher Kongress für Versorgungsforschung

Deutsches Netzwerk Versorgungsforschung e. V.

06. - 08.10.2021, digital

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Assessing changes in social functioning in the course of dementia: adaptation and psychometric evaluation of the German version of the Social Functioning in Dementia Scale (SF-DEM)

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  • Jessica Grothe - Institut für Sozialmedizin, Arbeitsmedizin und Public Health (ISAP), Medizinische Fakultät, Universität Leipzig, Leipzig, Deutschland
  • Melanie Luppa - Institut für Sozialmedizin, Arbeitsmedizin und Public Health (ISAP), Medizinische Fakultät, Universität Leipzig, Leipzig, Deutschland
  • Jens Dietzel - Klinik und Poliklinik für Psychiatrie und Psychotherapie, Universitätsklinikum Leipzig, Leipzig, Deutschland
  • Georg Schomerus - Klinik und Poliklinik für Psychiatrie und Psychotherapie, Universitätsklinikum Leipzig, Leipzig, Deutschland
  • Steffi G. Riedel-Heller - Institut für Sozialmedizin, Arbeitsmedizin und Public Health (ISAP), Medizinische Fakultät, Universität Leipzig, Leipzig, Deutschland
  • Susanne Röhr - Institut für Sozialmedizin, Arbeitsmedizin und Public Health (ISAP), Medizinische Fakultät, Universität Leipzig, Leipzig, Deutschland; Global Brain Health Institute (GBHI), Trinity College Dublin, Dublin, Ireland

20. Deutscher Kongress für Versorgungsforschung (DKVF). sine loco [digital], 06.-08.10.2021. Düsseldorf: German Medical Science GMS Publishing House; 2021. Doc21dkvf035

doi: 10.3205/21dkvf035, urn:nbn:de:0183-21dkvf0359

Published: September 27, 2021

© 2021 Grothe et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.

Outline

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Background: Dementia is one of the most common and most severe disorder in old age. In addition to cognitive decline and functional impairment, changes in social functioning occur in the course of dementia. Currently, there is no valid instrument in German language to assess social functioning in individuals with dementia.

Objective: We aim to adapt and psychometrically evaluate a German version of the Social Functioning in Dementia Scale (SF-DEM).

Methods: First, a multi-step and team-based translation process based on the TRAPD model was performed. Second, we interviewed dyads of individuals with mild dementia and caregivers to test the internal consistency, test-retest reliability, interrater reliability, construct validity and acceptance of the German version of the SF-DEM.

Results: The internal consistency of the patient-rated (α=0.72) and the caregiver-rated (α=0.76) SF-DEM is at an acceptable level. The interrater reliability was excellent for both versions (patients: ICC=0.98, CI [0.95-0.99]; caregiver: ICC=0.95, CI [0.89-0.98]) and the test-retest reliability was moderate (patients: ICC=0.57, CI [0.26-0.77]; caregiver: ICC=0.58, CI [0.27-0.78]). Caregiver-rated SF-DEM correlated strong with LSNS-6 (rs=0.60, p<.01), QoL-AD (marriage: rs=0.61, p<.01; friends: rs=0.51, p=.01). In addition, the SF-DEM was accepted by the participants.

Conclusion: The German SF-DEM is a valid, reliable and acceptable instrument to assess social functioning in individuals with dementia. Further research should address the psychometric properties in individuals with more severe dementia.