gms | German Medical Science

1st International Conference of the German Society of Nursing Science

Deutsche Gesellschaft für Pflegewissenschaft e. V.

04.05. - 05.05.2018, Berlin

Development of a theory based practice guideline for a quality of life oriented palliative care in residential care homes

Meeting Abstract

  • presenting/speaker Anne-Christin Linde - Institut für angewandte Forschung, Esslingen
  • Nadine Treff - Hochschule Esslingen
  • Annette Riedel - Hochschule Esslingen
  • Sonja Lehmeyer - Hochschule Esslingen

Deutsche Gesellschaft für Pflegewissenschaft e.V. (DGP). 1st International Conference of the German Society of Nursing Science. Berlin, 04.-05.05.2018. Düsseldorf: German Medical Science GMS Publishing House; 2018. Doc18dgpP67

doi: 10.3205/18dgp107, urn:nbn:de:0183-18dgp1075

Published: April 30, 2018

© 2018 Linde et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.


Outline

Text

Background and Purpose: The expansion of palliative care in Germany is proclaimed by professional societies [1], [2] (Supplemental material to [3]) and specifically required by law (e.g. Hospiz- und Palliativgesetz). The orientation towards quality of life as a central target dimension of palliative care [4] is becoming increasingly important in the nursing care for the elderly in residential care homes. Accordingly, the LebenBegleiten project pursues the goal of developing an evidence-based, ethically based and quality of life-oriented practice guideline that addresses current laws and frameworks and focuses on the perspective of care home residents and their relations.

Methods and Research Focus: The study includes a participatory mix method design with a mainly qualitative orientation. By means of a document analysis [5], processes and procedures relating to palliative care were identified. Based on this, focus groups made up of employees and home counselors explored the lived practice of palliative care support [6]. Key points and elements of the developed practice guideline will be agreed upon by a Delphi survey [7].

Methodological and Theoretical Focus: Based on grounded theory methodology, quality of life-oriented palliative care in residential care homes is conceptualized as the fundament for the development of the practice guideline, thereby contributing to the professional-theoretical discourse on the subject of care in residential care homes.

Results: A poster presentation demonstrates the procedure of the participative development of a practice guideline in a mixed-method-design as well as theoretical starting points for a quality of life-oriented palliative care in residential care homes.


References

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Deutsche Gesellschaft für Palliativmedizin (DGP); Deutscher Hospiz- und PalliativVerband (DHPV); Bundesärztekammer (BÄK). Handlungsempfehlungen im Rahmen einer Nationalen Strategie. Charta zur Betreuung schwerstkranker und sterbender Menschen in Deutschland. 2016.
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European Association for Palliative Care (EACP). Leitfaden für die Entwicklung der Palliativversorgung in der Primärversorgung. [Supplemental material to: Palliat Med. 2015 Feb;29(2):101-11.]
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World Health Organization. WHO Definition of Palliative Care. 2016 [accessed 28.05.2016]. Available from: http://www.who.int/cancer/palliative/definition/en/ External link
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Häder M. Delphi-Befragungen. Wiesbaden: Springer VS; 2014. DOI: 10.1007/978-3-658-01928-0 External link