gms | German Medical Science

Background and Purpose: Epilepsy is a serious health problem. Current numbers indicate that up to 0.5% of the children suffer under epilepsy. The syndrome is related to a higher mortality risk increased by 4 up to 15 times compared to children without epilepsy. A reliable seizure detection and recording could help to reduce mortality rates and serious health problems in children and adolescents with epilepsy. In this explorative study we aim to assess the usability of a device to detect epileptic seizures. This study is part of the EPItect project.

Methods: We are using a mixed-methods approach combining a pre-post design with a standardized questionnaire and focus group discussions gathering expert views about the usability of the epilepsy device and potential ways of improvement. The study took place at “Norddeutsches Epilepsiezentrum” (NEZ) in Raisdorf. We selected 60 children based on our inclusion criteria, currently we are in the interview process. We completed the focus group discussions, overall enrolling 25 professionals affiliated with the NEZ.

Results: Preliminary results indicate that the device might not be suitable for children with epilepsy. Final results will be expected by February 2018.

Conclusions: Epilepsy is a serious problem. A reliable seizure detection and recording could help to improve health care for children and adolescents with epilepsy. In this study, we aim to identify experiences of users and professionals in dealing with a seizure detection device.