Artikel
Scoping review on the methods used to develop and integrate patient decision aids in the context of clinical practice guidelines
Suche in Medline nach
Autoren
-
Lena Fischer
- Brandenburg Medical School, Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Deutschland; Brandenburg Medical School, Center for Health Services Research, Deutschland
-
Leon Vincent Schewe
- SHARE TO CARE. Patientenzentrierte Versorgung GmbH, Deutschland
-
Fülöp Scheibler
- SHARE TO CARE. Patientenzentrierte Versorgung GmbH, Deutschland; University Hospital Schleswig-Holstein, National Competency Center for Shared Decision Making, Deutschland
-
Rahel Wollny
- Brandenburg Medical School, Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Deutschland
-
Corinna Schaefer
- German Agency for Quality in Medicine (ÄZQ), Deutschland
-
Torsten Karge
- CGS Clinical Guideline Services GmbH, Deutschland
-
Thomas Langer
- German Network for Evidence-based Medicine, Deutschland
-
Jan Berghold
- Brandenburg Medical School, Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Deutschland
-
Ivan D. Florez
- University of Antioquia, Department of Pediatrics, Kolumbien; McMaster University, School of Rehabilitation Science, Kanada
-
Andrew Hutchinson
- National Institute for Health and Care Excellence (NICE), Großbritannien
-
Sheyu Li
- Sichuan University, Department of Endocrinology and Metabolism, Cochrane China Centre, MAGIC China Centre, Chinese Evidence-Based Medicine Centre, West China Hospital, China
-
Marta Maes-Carballo
- Hospital Público Verín, General Surgery Department, Spanien; University of Santiago de Compostela, Department of General Surgery, Santiago de Compostela, Spanien
-
Zachary Munn
- University of Adelaide, Health Evidence Synthesis, Recommendations and Impact (HESRI), School of Public Health, Adelaide, Australien
-
Lilisbeth Perestelo-Perez
- Canary Islands Health Service (SCS), Evaluation Unit (SESCS), Spanien; Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Spanien
-
Livia Puljak
- Catholic University of Croatia, Center for Evidence-Based Medicine and Healthcare, Kroatien
-
Anne Stiggelbout
- Leiden University Medical Center, Medical Decision Making, Department of Biomedical Data Sciences, Leiden, Niederlande
-
Dawid Pieper
- Brandenburg Medical School, Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg, Deutschland; Brandenburg Medical School, Center for Health Services Research, Deutschland
| Veröffentlicht: | 27. März 2025 |
|---|
Gliederung
Text
Background/research question: While clinical practice guidelines (CPGs) play a critical role in evidence-based decision making, it is essential to apply a person-centered approach to CPGs. Thus, collaborative decision making between health care professionals and patients, also known as shared decision making (SDM), is important, but systematic integration of SDM principles into CPGs remains limited. While patient decision aids (PDAs) can be seen as a bridge between CPGs and SDM, their development can be time consuming and they can quickly become outdated. A harmonized development process for CPGs and PDAs could help overcome these challenges. However, there is currently limited knowledge about methods for their linked development process. Therefore, we reviewed the methods used to develop and integrate PDAs in the context of CPGs.
Methods: We conducted a scoping review following JBI guidance and reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). We searched bibliographic databases (PubMed, Embase), grey literature, references, and consulted topic experts up to January 2024. Study selection was performed independently by two researchers. Data were synthesized narratively.
Results: Based on the 24 included documents, we formed four overarching methodological topics to sort the identified approaches: (1) selecting CPG recommendations for PDA development, which included 14 identified selection factors, of which uncertainty/variability in patient preferences and trade-offs between options were the most frequently mentioned; (2) developing and updating guideline-based PDAs, such as forming a multidisciplinary development group that includes patients and health care professionals among other members, considering the CPG group as part of the PDA development group or working in collaboration with the CPG group, using CPGs and their evidence summaries to inform PDA content, and updating the PDA when the CPG is revised; (3) assessing PDA quality by using International Patient Decision Aid Standards (IPDAS) criteria, and a multistage user testing process; (4) linking CPGs and PDAs, often through digital strategies.
Conclusion: We identified multiple methods for developing and integrating PDAs based on CPG recommendations. The most useful and feasible combination of methods remains to be determined. To foster SDM through CPGs, CPG organizations should harmonize the development process of CPGs and PDAs.
Competing interests: LLP is author of two documents included in this scoping review. AMS is author of two documents included. Others: None.
