gms | German Medical Science

1st International Conference of the German Society of Nursing Science

Deutsche Gesellschaft für Pflegewissenschaft e. V.

04.05. - 05.05.2018, Berlin

A participatory approach to develop a special health assessment instrument for people with intellectual disabilities

Meeting Abstract

Suche in Medline nach

  • presenting/speaker Lina Stölting - Ostfalia Hochschule für angewandte Wissenschaften – Hochschule Braunschweig/Wolfenbüttel
  • Jasmin Greskötter - Ostfalia Hochschule für angewandte Wissenschaften, Fakultät Gesundheitswesen
  • Martina Hasseler - Ostfalia Hochschule für angewandte Wissenschaften, Fakultät Gesundheitswesen

Deutsche Gesellschaft für Pflegewissenschaft e.V. (DGP). 1st International Conference of the German Society of Nursing Science. Berlin, 04.-05.05.2018. Düsseldorf: German Medical Science GMS Publishing House; 2018. Doc18dgpP50

doi: 10.3205/18dgp091, urn:nbn:de:0183-18dgp0914

Veröffentlicht: 30. April 2018

© 2018 Stölting et al.
Dieser Artikel ist ein Open-Access-Artikel und steht unter den Lizenzbedingungen der Creative Commons Attribution 4.0 License (Namensnennung). Lizenz-Angaben siehe http://creativecommons.org/licenses/by/4.0/.


Gliederung

Text

Background and Purpose: Life expectancy of people with intellectual disabilities (ID) has adapted to those of the general population. Staff of residential homes and professionals of different health care sectors are not able to approach to the increasing health and care needs of ageing people with ID.

People with ID experience health disparities. They have a higher prevalence of premature death, morbidity and mortality than general population due to a limited access to health care system. Yet it doesn’t exist a special health assessment instrument to provide adequate and comprehensive care to address these problems. As a first step to develop such an instrument it is necessary to interview people with ID and become acquainted with their experience with health care delivery and their perception of care needs.

Methods/Research Focus/Methodological and Theoretical Focus: A qualitative approach was chosen to interview people with ID who live in residential homes run by different social welfare bodies.

We developed and applied an open guideline interview in plain language supported by pictograms and pictures.

A qualitative content analysis by Kuckartz was used to code the participants’ interviews.

The theoretical and methodological framework was based on life situation concept and person-environment analysis.

Results: We identified barriers and beneficial factors according to health care and need of care in residential homes and cross-sector measures from the perspective of people with ID.

Conclusions: The people with ID interviewed have provided differentiated and detailed information about their health and nursing care and have supplied important indications to develop a special health assessment instrument.