Artikel
Potential users of visual prosthesis: expectations, motivation and attitudes towards participation
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Veröffentlicht: | 10. Dezember 2019 |
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Gliederung
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Objective: To describe patient views toward visual prostheses, along with perceived risks and benefits about emerging neuro-technology clinical trials.
Materials and methods: Subjects were 38 blind individuals (20 F/18 M) recruited through The Lighthouse of Greece. An information session about retinal, thalamic, and cortical approaches (RA, TA, CA) was given. A short questionnaire (SQ) was given to measure attitudes about visual prostheses. After an extended discussion period which included a focus-group protocol, a long questionnaire (LQ) was given to measure attitudes on visual restoration, perceived benefits and risks, desired visual outcome, motivation, and advice-seeking. LQ responses were correlated against demographic and other parameters, along with SQ answers.
Results: The average perceived risk in artificial vision is higher than the perceived benefit. In both SQ and LQ, benefits for TA are higher than for RA; however, for risks, CA is considered the most dangerous, followed by TA and then RA. Cause of blindness, remaining vision, residence, and age of onset affect the assessment of the three approaches. Importantly, those with remaining vision are less accepting of risk, while no-light-perception subjects are more accepting, although they do not differ in their assessment of benefit.
Discussion: Understanding the attitudes of potential recipients of visual prostheses and their assessment of existing approaches is crucial to maximizing the benefits for patients, researchers and clinicians.
Acknowledgment: Supported by William M. Wood Foundation and Haseotes Family Foundation.