gms | German Medical Science

G-I-N Conference 2012

Guidelines International Network

22.08 - 25.08.2012, Berlin

Introduction to G-I-N PUBLIC’s Patient & Public Involvement Toolkit

Meeting Abstract

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  • L. Knaapen - McGill University, Montreal, QC, Canada
  • M. Wang - Multiple Organisations, UK

Guidelines International Network. G-I-N Conference 2012. Berlin, 22.-25.08.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. DocPL07

DOI: 10.3205/12gin008, URN: urn:nbn:de:0183-12gin0086

Published: July 10, 2012

© 2012 Knaapen et al.
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Outline

Text

G-I-N PUBLIC is an international working group of researchers, health professionals and consumers who promote ways to involve the public in clinical guideline activities. G-I-N PUBLIC has developed a practical toolkit that can help guideline developers design effective public involvement activities. Authors from within and beyond G-I-N PUBLIC have contributed chapters to the toolkit, presenting best practices based on scientific literature, published reports, and the accumulation of international experiences.

This lecture will provide an overview of the toolkit’s content, presenting diverse methods of involving patients’ or the public’s perspectives at different stages of guideline development. Choosing the ‘right’ method will depend on the goals and expectations of the participants, as well as the availability of resources and skills to achieve them. Success depends on aligning the right resources, skills and goals with one another.

Three issues that are commonly experienced as barriers to patient & public involvement will be discussed in detail:

1.
Resources
2.
Which patients or members of the public are ‘representative’?
3.
Will ‘lay’ members understand medical and technical issues?

We will emphasis first, that these issues need not always be viewed as a major barrier, and could even serve as an opportunity to a better functioning guideline panel. Second, we will provide practical advice on how to overcome challenges: by combining several involvement methods, having effective recruitment strategies, and providing appropriate training and support. Since many of the challenges encountered are not unique to ‘lay’ members and may also be applicable to professional members on guideline panels, this advice will serve to benefit patient & public involvement and simultaneously improve the guideline development process as a whole.

Finally, for more detailed information on the toolkit, a panel session with the editors and several authors of the toolkit will follow this plenary session.