gms | German Medical Science

27th German Cancer Congress Berlin 2006

German Cancer Society (Frankfurt/M.)

22. - 26.03.2006, Berlin

Which sense does the registration of personal data in a cancer register have for the patient in confrontation with the diagnosis “Cancer”?

Meeting Abstract

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  • corresponding author presenting/speaker Margareta Hannig - Epidemiologisches Krebsregister Niedersachsen, Vertrauensstelle, Hannover, Deutschland
  • Roswitha Hanse - Epidemiologisches Krebsregister Niedersachsen, Vertrauensstelle, Hannover
  • Christiane Unger - Epidemiologisches Krebsregister Niedersachsen, Vertrauensstelle, Hannover

27. Deutscher Krebskongress. Berlin, 22.-26.03.2006. Düsseldorf, Köln: German Medical Science; 2006. DocPE638

The electronic version of this article is the complete one and can be found online at:

Published: March 20, 2006

© 2006 Hannig et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.



Introduction: Clinical and some epidemiological cancer registries in Germany may only collect data of concerned patients if the patients accede to recording of their personal data. Patients are often asked for their agreement being just confronted with the diagnosis “Cancer” for the first time.

Method: The various experiences connected with the diagnosis cancer are presented graphically in a picture of a tree of life. The leaves und branches of the tree represent personally hopes and fears of the patients. The aspects of health-political institutions as a socio-political task are also considered.

Conclusion: Cancer registration is one aspect of many leaves from the individually tree of life by confrontation with the diagnosis cancer. The experience of the patients are determined through both, their own diseases and the political health conditions. If the sense of cancer registry can be made understandable for the patients, their agreement to recording of their personal data leads to the important feeling of being useful for medical research in fight against cancer. This strengthens the self-confidential of the patients and is an little step for them to feel better in the whole way.