Article
Retina.net ROP registry in Germany
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Published: | May 30, 2012 |
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Background: Publication of the first data from the BEAT-ROP trial has created a novel situation in ROP treatment. In a defined patient population with ROP in zone I or central zone II, the attending ophthalmologist now has to decide whether to treat with intravitreal anti-VEGF therapy or conventional laser photocoagulation. In order to reach an informed decision, especially with regard to long-term outcomes, epidemiologic data regarding ROP incidence, treatment patterns and treatment outcomes are needed.
Methods: Retina.net Germany has initiated a registry aimed at collecting epidemiologic data on ROP incidence, treatment patterns and outcomes. Data storage will be in pseudonymised form.
Results: The Retina.net ROP registry will be launched shortly, pendig ethics approval. Content, web based entry masks and patient information material of the planned registry will be presented in order to give the audience the opportunity to give additional input before the project will be fully launched.
Conclusion: The Retina.net ROP registry tries to include as many clinical centers as possible in order to gather a representative image of ROP incidence, treatment patterns and treamtment outcomes in Germany.