gms | German Medical Science

25th Annual Meeting of the German Retina Society

German Retina Society

01.06. - 02.06.2012, Münster

Retina.net ROP registry in Germany

Meeting Abstract

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  • Andreas Stahl - Universitäts-Augenklinik, Freiburg i. B.
  • Tim U. Krohne - Universitäts-Augenklinik, Freiburg i. B.; Universitäts-Augenklinik Bonn und retina-net.uni-koeln.de
  • Retina.net ROP Study Group - Universitäts-Augenklinik Bonn und retina-net.uni-koeln.de

German Retina Society. 25th Annual Conference of the German Retina Society. Münster, 01.-02.06.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. Doc12rg01

doi: 10.3205/12rg01, urn:nbn:de:0183-12rg019

This is the translated version of the article.
The original version can be found at: http://www.egms.de/de/meetings/rg2012/12rg01.shtml

Published: May 30, 2012

© 2012 Stahl et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by-nc-nd/3.0/deed.en). You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.


Outline

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Background: Publication of the first data from the BEAT-ROP trial has created a novel situation in ROP treatment. In a defined patient population with ROP in zone I or central zone II, the attending ophthalmologist now has to decide whether to treat with intravitreal anti-VEGF therapy or conventional laser photocoagulation. In order to reach an informed decision, especially with regard to long-term outcomes, epidemiologic data regarding ROP incidence, treatment patterns and treatment outcomes are needed.

Methods: Retina.net Germany has initiated a registry aimed at collecting epidemiologic data on ROP incidence, treatment patterns and outcomes. Data storage will be in pseudonymised form.

Results: The Retina.net ROP registry will be launched shortly, pendig ethics approval. Content, web based entry masks and patient information material of the planned registry will be presented in order to give the audience the opportunity to give additional input before the project will be fully launched.

Conclusion: The Retina.net ROP registry tries to include as many clinical centers as possible in order to gather a representative image of ROP incidence, treatment patterns and treamtment outcomes in Germany.