gms | German Medical Science

GMDS 2012: 57. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e. V. (GMDS)

Deutsche Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie

16. - 20.09.2012, Braunschweig

EMPOWER – support of patient empowerment by an Intelligent self-management pathway for patients

Meeting Abstract

Search Medline for

  • Georgy Kopanitsa - Helmholtz Zentrum München – Deutsches Forschungszentrum für Gesundheit und Umwelt, Institut für Biologische und Medizinische Bildgebung. AG: MEDIS, Neuherberg, Deutschland
  • Hans Demski - Helmholtz Zentrum München – Deutsches Forschungszentrum für Gesundheit und Umwelt, Institut für Biologische und Medizinische Bildgebung. AG: MEDIS, Neuherberg, Deutschland
  • Claudia Hildebrand - Helmholtz Zentrum München – Deutsches Forschungszentrum für Gesundheit und Umwelt, Institut für Biologische und Medizinische Bildgebung. AG: MEDIS, Neuherberg, Deutschland

GMDS 2012. 57. Jahrestagung der Deutschen Gesellschaft für Medizinische Informatik, Biometrie und Epidemiologie e.V. (GMDS). Braunschweig, 16.-20.09.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. Doc12gmds113

DOI: 10.3205/12gmds113, URN: urn:nbn:de:0183-12gmds1139

Published: September 13, 2012

© 2012 Kopanitsa et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by-nc-nd/3.0/deed.en). You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.


Outline

Text

Patient empowerment [1] involves patients to a greater extent in their own healthcare process and disease management becomes an integrated part of their daily life. The capability of self-management opens the possibility for patients not only to contribute to their own healthcare but also to be more in control of their disease. We develop a modular and standard-based [2] Patient Empowerment Framework which facilitates the self-management of diabetes patients based on PHRs and on context-aware, personalised services.

Our project EMPOWER (http://www.empower-fp7.eu) focuses the research and development efforts on a patient-centric [3] perspective that also involves healthcare professionals. EMPOWER provides knowledge-based Self-Management Pathways for diabetes patients and this includes

  • services for the specification and execution of actions to change behaviour according to diabetes-specific health care needs and
  • services for monitoring of vital, physical, mental parameters as well as physical and lifestyle activities based on health standards.

EMPOWER semantically integrates multiple information sources (EHR/PHR [4], diabetes guidelines [5], patterns of daily living) for a shared knowledge model. The Self-Management Pathways facilitate the specification of recommendations that allow specifying individual goals for the patient. Based on these goals, relevant information and their preferences patients can specify their individual diabetes-specific actions.

To achieve this EMPOWER advances present data management methodologies by

  • Supporting semantic interoperability between different data exchange standards by integration of heterogeneous data (EHR, PHR and monitoring devices);
  • Development of a patient oriented solution supporting multimodal interfaces (e.g. mobile, web, speech-based)
  • Enabling user friendly presentation of standard based medical data (including patient oriented data visualisation);
  • Development of common knowledge models for diabetes management [Moser W];
  • Harmonisation of existing standards (ISO 13606 [6], HL7 [7] and IHE [8]);
  • Evaluation of the implemented solution in Germany and its impact on the patient-doctor communication and patients empowerment

The Self-Management Pathways are an iterative process where executed actions and reported patterns of daily life can be evaluated. Recommendations, goals and actions can be updated iteratively according to current needs and preferences. Finally, the services in EMPOWER will embrace semantic interoperability based on health standards e.g. HL7 and IHE profiles. A pilot application in Turkey (hosted by the Ministry of Health) and one in Germany (hosted by a network of GPs) will demonstrate that EMPOWER can interoperate with other health applications.


References

1.
Alpay L, van der Boog P, Dumaij A. An empowerment-based approach to developing innovative e-health tools for self-management. Health Informatics J. 2011;17(4):247-55.
2.
Garde S, Hovenga E, Buck J, Knaup P. Expressing Clinical Data Sets with openEHR Archetypes: A Solid Basis for Ubiquitous Computing. International J Med Inform. 2007;76: (S3).
3.
Tsalatsanis A, Gil-Herrera E, Yalcin A, Djulbegovic B, Barnes L. Designing patient-centric applications for chronic disease management. Conf Proc IEEE Eng Med Biol Soc. 2011;2011:3146-9.
4.
Logue MD, Effken JA. Modeling Factors That Influence Personal Health Records Adoption. Comput Inform Nurs. 2012. [Epub ahead of print]
5.
Moser W, Heller U, Gries FA, Engelbrecht R. Enabling guidelines for computer-based decision support – process and tools. Stud Health Technol Inform. 2001;84(Pt 1):231-5.
6.
Menárguez-Tortosa M, Martínez-Costa C, Fernández-Breis JT. A Generative Tool for Building Health Applications Driven by ISO 13606 Archetypes. J Med Syst. 2011. [Epub ahead of print]
7.
López DM, Blobel B. Architectural approaches for HL7-based health information systems implementation. Methods Inf Med. 2010;49(2):196-204.
8.
Masi M, Pugliese R, Tiezzi F. Security Analysis of Standards-Driven Communication Protocols for Healthcare Scenarios. J Med Syst. 2012. [Epub ahead of print]