gms | German Medical Science

G-I-N Conference 2012

Guidelines International Network

22.08 - 25.08.2012, Berlin

Consumer and Public Involvement in Guideline Development

Meeting Abstract

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  • P. Robertson - American Academy of Otolaryngology-Head and Neck Surgery Foundation, Alexandria, USA
  • H. Hussey - American Academy of Otolaryngology-Head and Neck Surgery Foundation, Alexandria, USA

Guidelines International Network. G-I-N Conference 2012. Berlin, 22.-25.08.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. DocP088

doi: 10.3205/12gin200, urn:nbn:de:0183-12gin2001

Published: July 10, 2012

© 2012 Robertson et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.



Background: In March 2011, the Institute of Medicine released a consensus report titled 'Clinical Practice Guidelines We Can Trust'. The report highlighted eight standards that epitomized trustworthy guidelines and included calls for greater consumer and public involvement in the guideline development process.

Context: Our organization works to advance the art, science, and ethical practice of our specialty through education, research, and lifelong learning. To support our mission, we have been developing evidence based clinical practice guidelines since 2006 and have increasingly sought the input of consumers and the public during our guideline development process.

Description of best practice: Our organization has developed a collaborative relationship with a coalition of consumer advocacy groups to incorporate educated consumers, often familiar with guideline development methodology, as participants on our guideline development groups. We now, at a minimum, have two consumer representatives participate on each of our guideline development groups. Additionally, in response to the IOM report, we have now begun to make a final draft of each guideline available for public comment. We believe the public comment period promotes greater transparency and in our experience has provided great insight and signaled improvements to each guideline.

Lessons for guideline developers, adaptors, implementers, and/or users: Guideline developers will learn how and when to involve consumers and the public in the guideline development process. In addition, this poster will highlight the important role of the patients' perspective and preferences in a guideline's development.