gms | German Medical Science

G-I-N Conference 2012

Guidelines International Network

22.08 - 25.08.2012, Berlin

Consumer and Patient Engagement in Developing Clinical Guideline Support Tools

Meeting Abstract

  • K. Ramaya - Pacific University, Forest Grove, Oregon, USA
  • C. Davino-Ramaya - Kaiser Permanente Northwest, Portland, OR, USA
  • J. Haynes - Kaiser Permanente Care Management Institute, Oakland, California, USA
  • A. Fenton - Schnitzer Steel Industries Inc, Portland, Oregon, USA; Kaiser Permanente Care Management Institute, Oakland, California, USA
  • M. Cowing - Pacific University, Forest Grove, Oregon, USA

Guidelines International Network. G-I-N Conference 2012. Berlin, 22.-25.08.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. DocO41

DOI: 10.3205/12gin073, URN: urn:nbn:de:0183-12gin0732

Published: July 10, 2012

© 2012 Ramaya et al.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by-nc-nd/3.0/deed.en). You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.


Outline

Text

Background: This work addresses challenges organizations face in utilizing consumers/patients in developing clinical practice guideline (CPG) patient-support tools for preventive care. We discuss consumer recruitment, topic identification, culturally relevant tool development, implementation and follow-up.

Objectives: Address high-priority topics identified from survey results; Create support tools that are culturally sensitive, informative and actionable; Empower consumers/patients to discuss screening options with health care providers.

Methods: We examine the role of consumer/public engagement in developing CPG support tools. Survey results elicited topics and outcomes important to consumers/patients for inclusion in developing consumer-directed tools reflective of an otherwise clinician-directed guideline. Cultural sensitivities and preferences were elicited and incorporated in tool development.

Results: Through health topic selection, barrier identification and tool development, long term results and post focus-group follow-up survey address tool effectiveness in preventive care awareness and potential closure of care gaps.

Discussion: Processes include selecting an existing high quality evidence based CPG focusing on disease prevention and screening. Through consumer/patient participation these tools assist consumers in being informed and more directly involved in health care choices. Additionally, by identifying cultural sensitivities while developing these tools, consumer/patient input will help ensure addressing specific preferences and needs. A secondary long term outcome includes possible closure of care gaps where cultural disparities are greatest

Implications for guideline developers/users: This process may serve as an alternative for resource constrained health care organizations who use preexisting clinical guidelines and who understand the value of incorporating consumer/patient perspective in developing tools to support their healthcare decisions.