gms | German Medical Science

G-I-N Conference 2012

Guidelines International Network

22.08 - 25.08.2012, Berlin

Methods of public and patient involvement – a toolkit

Meeting Abstract

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  • C. Schaefer - German Agency for Quality in Medicine, Berlin, Germany

Guidelines International Network. G-I-N Conference 2012. Berlin, 22.-25.08.2012. Düsseldorf: German Medical Science GMS Publishing House; 2012. DocPS06

doi: 10.3205/12gin018, urn:nbn:de:0183-12gin0180

Published: July 10, 2012

© 2012 Schaefer.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( You are free: to Share – to copy, distribute and transmit the work, provided the original author and source are credited.



Background: G-I-N PUBLIC is an international working group of researchers, health professionals and consumers who promote ways to inform and involve the public in clinical guideline activities. G-I-N PUBLIC is currently developing a toolkit that assembles international experiences, strategies and best practice examples of successful patient involvement. The toolkit will be launched at the G-I-N 2012 conference in Berlin.

Objective: To give an overview of international methods of public/patient involvement in guideline development.

Suggested audience: Guideline developers, patient/consumer representatives

Moderator: Corinna Schaefer, Germany

Speakers: Trudy van der Weijden, Netherlands; Sarah Chalmers, UK; Javier Gracia, Spain; Carrie M. Davino-Ramaya, USA

Description: Patients/consumers can actively participate and add value in the development of CPGs at various points in the process and in diverse settings. Motivations, aims and purposes for patient/consumer involvement are as diverse as the setting where guidelines are developed. As a result, there are a multitude of innovative methods, yet practical guidance is lacking to support the design of effective involvement methods. G-I-N PUBLIC has sought to address this gap and produced a practical involvement toolkit for guideline practitioners.

Panel members will present different aspects of the toolkit. Trudy van der Weijden will present a framework of different patient/public involvement interventions. Sarah Chalmers will discuss patients' recruitment and training methods, Javier Gracia will address experiences in public consultation strategies and Corinna Schaefer standards of communicating CPGs to patients. Carrie M. Davino-Ramaya will report on the methods and future directions for the international toolkit project.